Say Hello to Edward
Download the song this Christmas dedicated to young Edward who is living with Duchenne. All proceeds are to help us support research and our campaign to cure Duchennne.
- Health Minister to speak at Action Duchenne Conference
- Dawn Primarollo replies to Action Duchenne
- Means testing for housing grants abolished following Action Duchenne lobbies of the Scottish Parliament
- Ring Fence Duchenne
- Action Duchenne calls for an immediate and thorough review of the use of steroids in treating Duchenne
- Tim Henman supports Action Duchenne
- Action Duchenne wins £500,000 for Education Project
- Action Duchenne’s Genius Project receives £261297 funding to turn young people's passions into community action
- Read all the news articles »
- Research report of the Action Duchenne and PPMD 2007 conferences
- Action Duchenne funds £155K research project
- Prosensa start systemic exon skipping triial
- Pre Clinical study shows postive effects for Utrophin upregulation drug SUMC1100
- Santhera announces results of clinical double blind trial for SNT-MC17
- PTC announces clinical trials for PTC124 in Europe
- PTC124 update from PTC Therapuetics
- Parent Project MD USA conference 2007 report
- Summit receives £220K for Duchenne research
- Research article archive »
Our Newsletter
Sign up to the Action Duchenne newsletter and keep up wih all our research, fundraising and campaign news.
Upcoming events
-
06 Dec 08
Fundraising
Gala Concert for Saul Cowbridge, South Wales -
17 Oct 08
Fundraising
live music Bath -
20 Oct 08
Fundraising
Whickham High School Charity Week Whickham, Gateshead
Featured Blog
Nicks BlogNick Catlin
- 17 Sep 2008
Centres of Excellence - Action Duchenne meets Minister
- 14 Jul 2008
Action Duchenne meets with Health Minister Ann Keen
- Read more from this blog »